I went to my neuro last Friday. My husband and I made a list of the symptoms I am having to talk with him about.
I told him about the lightning bolt headaches, the pain in the nape of my neck when I look down, the constant buzzing in my feet, arms and hands, the jello legs and so forth. He listened as we read down the list and nodded.
I like him for the most part. He is a little guy from India, very pleasant and quiet spoken. The part I don’t like is his uncertainty and unwillingness to commit to a probable cause of my problems. He is young and a text book doctor who does not believe things fit in a certain category unless all the symptoms are there as they are written in the book.
He tells me I have a lot of symptoms of MS, but the jello legs and such have nothing to do with MS. I beg to differ. If all the doctors would actually talk with MS patients and realize that there are none that I know of who “fit the criteria” for MS, they would begin to realize just how strange this disease is.
I go on a lot of MS sites and read what others are saying. So many are in the same boat I am. They go from doctor to doctor without any relief or understanding. Some get so discouraged that they stop even trying to find a doctor. They have no help with their pain and fall into that dangerous hole of depression. I do not intend to do that. Although it seems like a long road to travel at the moment, I am going to keep on it and make the best of what I run into.
I don’t care what I doctor wants to call what I have. I don’t want to get on a high powered MS drug at my age anyway. I just want someone to be willing to help me when something drastic happens that is out of the norm. He can call what I have bubonic plague, jungle rot or ingrown toenail for all I care. All I am asking is that he give me a little understanding and try to help me get through it……….until he reaches that point, me and my duck will just waddle along and quack to each other!